Centronuclear and myotubular myopathy are rare inherited neuromuscular diseases of which there are three forms, x-linked, autosomal recessive and autosomal dominant. The conditions manifest themselves as defects in the cell structure of voluntary muscles, causing low muscle tone and affecting children and adults at various stages of life. The Information Point is a UK based organisation established in 2001 which aims to: * provide information about centronuclear and myotubular myopathy* provide support by bringing people with the condition together * create awareness of these rare conditionsAs part of its awareness raising activities, The Information Point also runs The Big Sunflower Project which aims to raise awareness of centronuclear and myotubular myopathy by asking people to grow a sunflower. Since 2011 the project has given away sunflower seeds in return for photos of the sunflowers, which are displayed on The Information Point website, in newsletters and on social media. 2015 is the fifth year of the project and this year seeds have been sent to schools and nurseries, community groups, groups who work with disadvantaged people, hospices and youth groups to name a few, so as well as raising awareness of centronuclear and myotubular myopathy, the project supports the activities of these groups too.